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To raise awareness and drive change everywhere around the world for all people living with dysimmune and inflammatory neuropathies, their families and carers.
Dysimmune inflammatory neuropathies are rare diseases still poorly understood, although some of them are treatable.To find new treatments, research is essential. Some treatments, already known and very useful to maintain the physical autonomy of the patients, suffer from shortages almost everywhere in the world. Sometimes they are not accessible to patients at all.
Many dysimmune inflammatory neuropathies are treated with plasma-derived products. Collecting enough plasma to make these treatments is an essential step in helping patients to live.
As the number of patients to be treated increases, patients need generous donors to give their plasma. Anyone in good health can make a donation.
Don’t hesitate, donate your plasma and help thousands of patients receive their treatment!
Join us to support the community of people living with dysimmune & inflammatory neuropathies worldwide. Get informed about DINs, share your experiences, raise awareness around you
Pr Eduardo Nobile-Orazio, neurologist offers a comprehensive overview of DIN
From Neuromuscular and Neuroimmunology Service, Milan University, Humanitas Research Institute, Rozzano, Milan, Italy Pr Eduardo Nobile-Orazio presents the DIN and sheds light on the subject with Italian examples.
Dr Katherine Hall – Alexander the Great and GBS
Catherine Hall is a physician at the University of Otago in New Zealand. She has conducted historical research into the death of Alexander the Great. You will discover that the date of June 11, now dedicated to DIN DAY, was not chosen by chance…
DIN: description, monitoring, therapy and ongoing clinical trial. Overview by Dr Luis Querol
Dr Luis Querol is neurologist at Neuromuscular BCN Hospital de la Santa Creu I Sant Pau de Barcelona. He reviews different aspects of DIN. GBS, CIDP, Nodopathies ; MMN ; MGUS-Anti-MAG, Monitoring (wearable monitoring system, biomarkers), Therapy, Clinical trials (CTs) and ongoing CTs.
Immune Globulin Therapies, Historical Development And Futur Perspectives. Dr Patrick Robert MRB
Immune Globulin Therapies, historical development and futur perspectives. A subject that is often known only to experts and yet is of real interest to people with DIN. Dr Patrick Robert from the Marketing Research Bureau, has a huge expertise is the domain of global plasma derive medicinal products.
Dr Teresinha Evangelista, Coordinator Of The ERN For Neuromuscular Disorders EURO-NMD
Dr Teresinha Evangelista is a neurologist. She coordinates the European reference network EURO-NMD (neuromuscular disorders). She explains what ERNs are and discusses the integration of inflammatory dysfunctional neuropathies within the network.
